Thursday, April 08, 2010

Cystic Fibrosis

Good Morning Ladies!

So yesterday was a fabulous day! Despite all the things I had to do I enjoyed time with my best friend! But that is not what my blog is about today.

Today I am talking about something so much more serious... three months ago I said friends in my life had passed away in some of the most tragic ways, well I am happy to say that because of my best friend we are doing something about it. My best friend  will be starting a Cystic Fibrosis organization to honor our friend. Not only that, but she wants me to be a huge part of this organization! I am happy to announce that I will be treasurer! Now I can not give any details beyond this because nothing is legal yet, and due to family dynamics no information is to be released till all paperwork is signed and legally authorized for us. (Don't you just love family giving everyone a hard time over a great cause? yea right)...

So in-lue to these new developments.... And my newest weight loss challenge! I will be donating 5 dollars for every pound that I lose! I am happy to be donating to a great cause and hope that people will participate in my cause!

Now, not only does this affect me due to losing a loved one but it also personally affects me because I carry the Cystic Fibrosis gene. Subsequently going through testing during my pregnancy. Fortunately my husband does not carry the primary Cystic Fibrosis gene yet might carry a form of the mutation that may result in male infertility. All I know is that my daughter is most likely a carrier which puts her children at risk. And, I have also spoke about Celiac disease on here and want all to know that Cystic Fibrosis is related to Celiac, they are two peas in a pod. Of the same gene and more importantly Celiac is a form of Cystic Fibrosis. Now my god daughter and her little brother both have Celiac disease, and since they are unsure which parent is the carrier, both of their parents are following the same Celiac diet to prevent their own reactions to gluten.

So these are things that hit close to home. Not some exorbitant diagnosis that has nothing to do with me but is something that is a part of me.

Now although my philosophy has always been to not be apart of a non profit organization, due to my capitalistic economic perspective. I feel that this organization will be for the best interest of all participants and not being apart of it would do others and myself a huge dis-service.

What does this mean in regards to my new years resolution, I am becoming apart of something that is bigger than me. Something that I take to heart and care about. But, also something that will remain with me for the rest of my life. Where as I am not focusing on the here and now. I am focusing on the bigger picture of my life. Doing good and living in a way that is productive to my community.

Does it always have to be about my new years resolution... well in part yes! I am changing my life for the better and the few steps that I take to better me and the world around me is all part of what I want to do for the rest of my life. As is my business... speaking of if I am going to be home by the end of the year I will sooo need something to fill my time.


Anyway that is all for today. I hope that all of us can see events in our lives and participate in something bigger than us.

2 comments:

  1. I love the idea of donating $5 for every pound you lose. What a great cause, and something that has such personal importance. How completely awesome, I will mention it on the LHA page.

    ReplyDelete

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Measurments- sept 1, 2009

L arm: 12.5
R arm: 12.5
L thigh: 26
R thigh: 25.5
L calf: 15
R calf: 14.5
Bust: 34.5
Waist: 37
Thighs: 40.5